March 31, 2016

Graycee had her check up/ pre surgery appointment today. They did another x-ray. It showed that her shoulders are square with her pelvis and that's exactly what you want. She is not getting worse, which is also obviously the goal. He was unable to tell if the lung was getting any bigger though. One of the clusters on her ribs stayed apart where they cut previously but the other one looks like it fused back together so they will actually cut it out and her ribs will float. Her next surgery they will replace the current rod with a new one, which means they will have to cut the full length again so we will be staying the night in the hospital to watch her and make sure she does well. We won't know until the Dr is in there if they are going to do her spine as well. He will have all the equipment that he needs for it and if he decides she is big enough and needs it right now he will go ahead and do that, which will turn into a 3-4 day stay at the hospital. All in all he said she is doing good and they just have to kinda make it up as they go. He wants to get smaller equipment that is more low profile for her because she is so tiny and he thinks he found some smaller hooks for this next rod. Her next surgery is scheduled for June 13, 2016.