December 28, 2015
Graycee had her check up appointment today. Another x-ray was taken and all was in place and looked good. He wasn't able to tell if the expansion is actually separating her ribs or if it is just from her growing. she is so tiny and the x-ray positions were different from the time before but all in all it was good. He is hoping to get at least one more expansion out of this current rod. She still has clusters fusing her ribs together and he believes that when we do the rod along her spine that will help it the most to straighten her out. He is just waiting for her to grow and get a little bigger so that we are able to do the rod along her spine. There is a magic rod where they can adjust it by using a magnet and it would be an office visit to expand. He is going to a conference in January to discuss her complicated case with more doctors to make sure that they are doing all they can and doing things right for her right now.